Tag Archives: under 50s

Finding Hope….

9 Apr

sping flowers“Hope is the thing with feathers 
That perches in the soul
And sings the tune without the words
And never stops at all.”

Emily Dickinson

laura 6

I cried this week – tears of sorrow and anger.  Beautiful Laura passed away. She was taken from her family and friends far too young, a month after her wedding day. It was a day I’d been dreading for some time.   It’s simply not right and it makes me angry because her untimely death could and SHOULD have been prevented.  Bowel cancer is after all really a good news story… it is preventable, treatable and curable.  This blog is dedicated to her.

Star of hopeWelcoming Ben Richards…

ben_richards

I hope Laura would have been pleased to hear that 40 year old actor Ben Richards became a patron of Bowel Cancer UK this last week. He is living proof that you can survive bowel cancer.    I was particularly delighted because I’m rather tired, if I’m honest, of simply hearing how embarrassing bowel cancer is.  I can’t help but wonder if by endlessly repeating that, if it doesn’t make it become so.  I know it’s hard for us British/English/Welsh/Scots/Irish* (*delete as appropriate or add your own!) lot to talk about the symptoms.  After all blood in your poo, a change of bowel habit, pain in your tummy aren’t everyone’s hot topic of conversation but my goodness surely it’s far worse to die by not doing so.

Star of hopeLove your bowel

love your gut

I’ve a long-held belief that we need to move the debate about bowel cancer on – we need to take a fresh look at the way we image and talk about the disease in order to find a way to mainstream it.  The word bowel is one of the barriers as people don’t really understand where or what it is compared to say the heart and lungs and think it’s all a bit unpleasant.  I believe we need to change this and educate people about what their bowel is and why it is so vital for our digestive health.

One thing I’m certain about is that many of those without some part, or all, of that question mark shaped internal organ, would testify that life is easier with it than without it.

Star of hope  Giving hope 

I find it terribly frustrating that some cancers are considered ‘sexier’ than others.  If you are a celebrity that has had a ‘sexy’ cancer it seems absolutely acceptable to share your story and even those with no connection to the disease are happy to be associated with it.  Celebrity support certainly gets media attention and that can be positive.  So why should it be any different for bowel cancer?  After all, no cancer is sexy and every cancer patient is as important as another.  I firmly believe that bowel cancer patients deserve the same support as others.  So come on all you ‘celebs’ out there… we need you to stop perpetuating the myth that this cancer is ‘embarrassing’ and talk about it instead.  Please step up, share your stories, show your support, raise awareness – give hope.  You can make a difference.

I can’t help but wonder if Laura had read such a story in a magazine or found it on the internet – maybe, just maybe, she would have known how important those symptoms she was experiencing were and insisted she was checked properly.  Maybe that would have meant her family wouldn’t have been burying her tomorrow and that they wouldn’t have been left absolutely shattered, empty and heartbroken by her loss.

Star of hopeA bright future

Laura’s passing rocked many of my patient friends on Twitter – particularly those with advanced disease – it seemed to give wings to those awful fears lurking beneath the surface and to at least temporarily take away their confidence and hope.  So I want to finish this by sharing one story that should give hope.

Hayley and AutumnHayley was diagnosed at 32 after her baby girl Autumn, was born prematurely at 27 weeks and sadly passed away a few short weeks later because Hayley’s bowel tumour had stopped her growing.  Hayley blogs  incredibly movingly about how Autumn saved her life, as this led to her diagnosis of stage 3 bowel cancer.  Via the wonders of social media, I walked alongside Hayley throughout her treatment and helplessly watched her struggle with chemo and regular emergency visits back to the hospital with infections and high temperatures.  After all that, she also had to deal with radiotherapy too.  It was tough, physically and emotionally and on top of everything else she was grieving for her baby.  Wonderfully, she is now cancer free and her blog describes the future she sees ahead of her.

‘Until recently, I couldn’t see past the treatment – now all I can see is holidays away with Paul, having fun with family and friends and having our family we have always wished for. I can’t think of a better way to celebrate our daughter’s gift to me than having a little brother or sister (or both) to whom we can share our wonderful story of their big sister, Autumn.’

Hayley has a bright future ahead of her but it is very different from the one she expected.  She shared her story for Bowel Cancer UK’s Never Too Young campaign. You can watch it here.

Star of hopeTake action

We launched our Never Too Young campaign because of younger bowel cancer patient’s experiences and to seek positive solutions so that younger patients could be identified and diagnosed more quickly.  I want to be part of stopping this senseless loss of life, I want there to be real reasons for hope.  I’m fundraising because this all costs money and the charity doesn’t have enough.

My tandem Skydive was delayed due to the snow (just a brief reprieve!) but it is looming again, re-scheduled for the 20th April.  When I’m doing it and conquering my very real fear, I am going to think about Laura and remember that she should have enjoyed her future too,  surrounded by her loving family and friends.

Please sponsor me and take action to make positive change by joining Bowel Cancer UK’s  Never Too Young campaign.

 

RIP Laura

Do not stand at my grave and weep

Do not stand at my grave and weep;

I am not there. I do not sleep.

I am a thousand winds that blow.

I am the diamond glints on snow.

I am the sunlight on ripened grain.

I am the gentle autumn rain.

 

When you awaken in the morning’s hush,

I am the swift uplifting rush

Of quiet birds in circled flight.

I am the soft stars that shine at night.

Do not stand at my grave and cry:

I am not there. I did not die.

Mary Frye

To sponsor me please go to  www.justgiving.com/deborah-alsina

For Bowel Cancer information please visit www.bowelcanceruk.org.uk

To find out more about the bowel please follow this link to our interactive diagram

To find out how you can ‘love your bowel’ please click here.

If you have concerns or questions about any aspect of Bowel Cancer, please contact our specialist nurses on Freephone 080 8 40 35 40 or email them on support@bowelcanceruk.org.uk

Mid Life Crisis?

20 Mar

Image

My closest girlfriend called me the other day to tell me she was worried I was having a mid-life crisis.  She had just heard that I’d signed up to do a skydive and called to talk me out of it – bless her.  My dear friend of 26 years had decided I’d lost the plot finally – maybe she’s right. I mean – why else would you offer yourself up to be thrown out of a plane?

Well I had some reminders recently of why I’m relatively confident about my sanity levels …

Never Too Young

This week Bowel Cancer UK launched a new campaign. ‘Never Too Young’ with the aim of improving the diagnosis, treatment and care of younger (under 50) bowel cancer patients in the UK.  Our campaign film highlights just why this is so important. 

To inform our campaign we conducted research into the experiences of younger patients which we summarised in our Never Too Young report. 

One of the findings that stood out for me was that younger patients are experiencing delays in diagnosis for two main reasons.  Firstly, GP’s are delaying referring people through for diagnostic tests and in fact 42% of women,  compared with ten per cent of men either saw their GP more than five times before being referred to a specialist, or were diagnosed as an emergency before being referred.

Secondly, over half (60%) of patients were not aware of the symptoms of bowel cancer prior to being diagnosed, and were not aware of bowel cancer as a disease younger people could develop. A quarter of people (25%) waited over 6 months to see their doctor as they didn’t realise the significance of their symptoms or felt reluctant to discuss them.  This can have terrible consequences and has for Laura.

Laura was 30 when she was diagnosed with bowel cancer.  She had symptoms for nearly two years before she was diagnosed.  Unfortunately, she didn’t understand their significance and was re-assured when her doctor told her that it could not possibly be bowel cancer because she was too young.  The terrible pain in her tummy was put down to painful periods and the bleeding she experienced on and off for two years wasn’t investigated.  Unfortunately when she was finally diagnosed at the age of 30, the disease had already spread to her liver and her lungs and is now in her bones too.

Laura happy on her wedding day

Laura happy on her wedding day

Despite gruelling treatment, on the 1st March, Laura married her fiancée Alan at their dream wedding in Scotland.  Yet instead of going on her honeymoon, she had to go to hospital to start a new round of palliative chemotherapy instead.  Every contact I have with Laura and her lovely Mum Lesley makes me ache, because I can feel their pain and grief, yet they are amazingly supporting our Never Too Young campaign because they want this to stop.  After all, this should not be happening to Laura, to anyone.

Laura and Alan

Laura and Alan

 

Bowel cancer is treatable but early diagnosis makes that much easier.

Finding Solutions

I know that some will think that our focus on younger patients is a ‘red herring’ because the number of people diagnosed only represents 5% (c. 2,100) of the 41,000  diagnosed each  year in the UK.  I strongly disagree.

To me those c.2000 patients, represent, 10,000 patients over 5 years, 20,000 patients over 10 years – and each one has hopes, dreams and family and friends who love them and whom they love.  They deserve the same chance of and have the same right to life as anyone else.  I resolutely refuse to give up on them simply because they are difficult to target or detect.

However I do acknowledge that the solutions are not straight forward.  GPs for example, have an incredibly difficult job to identify those patients they should be referring on for diagnostic tests.   They will see many young people who have symptoms that could be bowel cancer but may only see a few cases (if that) during their career in the under 50s.   They are also under pressure to refer less people through to endoscopy teams who are over-stretched and under-resourced.

We need to find a solution that empowers and enables GPs to make those difficult decisions and build the capacity of our endoscopy units to ensure they can provide high quality services to meet rising demand.   That’s why we are calling for the development of a risk assessment decision aid tool to be developed for GPs around bowel disease, sustained investment in endoscopy services so this is not a barrier to diagnosis and a registry of younger patients to be set up, so we can better understand the epidemiology of cancer.

Information and Support

Our report also highlights gaps in information and support for younger bowel cancer patients. Only 1 in 4 women and just fewer than 1 in 2 men were happy with the levels of support they received.

Isolation and loneliness is felt by many younger bowel cancer patients. Although peer support was identified as a major factor that could have improved treatment more than half of patients felt that they had no-one their age with bowel cancer to talk to.

Younger patients inevitably have different concerns from older patients – many have concerns about how treatment will affect their fertility, their body image and sexual relationships.  Looking after young children is also a major concern for some.

Katie, husband Stuart and children Sophie 4 and Sam 8

Katie, husband Stuart and children Sophie 4 and Sam 8

Katie, 32, a former national junior ice skating champion has been highlighting the issues she is currently facing in her moving blog, as she tries to come to terms with the reality of  having terminal bowel cancer.   Several recent newspaper articles have highlighted her despair at the prospect of leaving her young children of 4 and 8 without a Mum.

Katie now

Katie now

Katie and her family and friends are currently fundraising for Bowel Cancer UK and remarkably despite all that she is going though she is determined to raise awareness and is supporting our  Never Too Young campaign.

I so wish she didn’t have the personal insight about why this is so very important.

The skydive approaches…

So as I told my lovely friend, I’m OK about jumping out of a plane, despite the fact this is not in my job description and I am absolutely not doing this for ‘fun’.  I’m not an adrenalin junky, I’m not into heights and have no personal desire to put my life in the hands of another person whilst hurdling towards the earth and I’m particularly petrified of landing.  Skydiving has NO appeal to me whatsoever BUT if our amazing patient supporters show such determination to raise awareness and funds, how can I not also face my fears and join them.

So as I have said before, if this resonates with you, if this matters to you and you want to be part of ensuring that younger cancer patients have a bright future please support or join Laura, Katie and me.  Please help us raise awareness and funds so Bowel Cancer UK can continue to campaign for younger patients and further develop our information and support services for them.

Or just sponsor me. http://www.justgiving.com/deborah-alsina

You can also donate via Bowel Cancer UK’s website by following this link. 

Thank you in advance for your support.

If you are concerned about any aspect of bowel cancer, Bowel Cancer UK’s information and support line, staffed by specialist nurses can be reached on freephone: 0800 8 40 35 40 or you can email: support@bowelcanceruk.org.uk

%d bloggers like this: